maystone: (Whoa by queensjoy)
Wow, you guys are major talky meat today! I just logged on for the first time today to check out my flist, and it was skip40. Lots going on with you guys in the past day, happily most of it good, although there were a few sad entries, sorry to say.

OK, biopsy results. As my doctor put it, "There's good news and bad news." Always a swell intro when you're talking medical stuff :) The good news is that there was no sign that an autoimmune process is attacking my kidneys. That doesn't mean that I don't have an autoimmune disease, just that it isn't the cause the of the problem. And the problem is . . . I have both chronic and acute interstitial nephritis. And arent' you glad you asked. That link is to the most layperson-friendly description of the disease that I came across, in case anyone was curious about it.

The cause would appear to be an acute allergic reaction to some medicationss I've taken over time. Because the medications were continued over the years, the acute phase morphed into the chronic condition which left "lots of scar tissue" according to the doctor. The medications? Advil and hydrochlorothiazide (HCT, a common diuretic and anti-hypertensive med.) It's not just that I took Advil, it's that I would take four at a time for pain, and I was doing that most days of the week for years and years. And the HCT I would take on a daily basis for years, too, sometimes at a prescribed high dosage depending on how my blood pressure was acting up. So it's my own damn fault, partly.

The acute phase that I'm going through now is also because of some meds that I'm taking currently for pain and inflammation and gall bladder stuff. I've stopped taking them as of today (duh), and the doctor is expecting that the acute complications will go bye-bye very quickly. So that's the good news in the bad news. The chronic stuff is, well, chronic. We'll just have to see how it goes. Although another check in the good news column is that my kidney function has stabilized: it hasn't improved over the past few months, but it hasn't worsened, either. I can live with that. Literally. Heh.

I can't take most anti-inflammatories anymore, which is kind of a bummer, except it's offset by the fact that what I can take is codeine. Narcotics! Yay! Just kidding :) Unfortunately I'm one of the people who can't take a lot of codeine because it depresses my breathing. This is going to get interesting, eh.
maystone: (News by Lee)
Thank you for all of the wonderful birthday wishes. It made me blub a little bit, I have to admit. The day itself was not much in the way of birthday celebrating. That abscessed tooth of Dar's went really septic and spread to her ear. We spent yesterday trying to get it seen to at the oral surgeon's office, but after trying unsuccessfully to take care of it he said that nothing could be done until the infection was cleaned up. She's on massive antibiotics, and he's going to try again next Tuesday. Poor wifey is in a great deal of pain both from the abscess and from the side effects of the meds. Good vibes going Dar's way would be greatly appreciated.

I got a call from the nephrologist this morning. She had a sudden cancellation and wanted to know if I could make it in at 11AM. I could! I did! I really like her on both a professional and personal level, and I'm very glad that my rheumy referred me to her.

OK, the upshot is that she has no idea what's wrong with my kidneys. Hey, why should she be any different, right? There's definitely something wrong, but there's no clue as to what is causing it. So she's going to do a kidney biopsy in hopes that it will give us some kind of definite answer and a direction. She spent a good 10 minutes going over everything that could go wrong, but really . . . I want this done. I'm so tired of not having something known that I'm getting desperate for answers. There's a 50/50 chance that the biopsy will come back normal, but I'm willing to do this anyway. I don't have a definite date; her secretary will call back tomorrow I think. It should be within the next two weeks, and I'll have the report about six weeks after that.

The procedure itself is scheduled as day surgery and takes about 45 minutes. If everything goes well, they'll keep me about six hours after that just to keep an eye on me, then send me home. I'll have to go back in the next morning for an ultrasound to check for bleeding. If something goes wrong during the biopsy, I'll be in overnight.

The good news is that while my kidneys are functioning at about 60-65%, they've stabilized at that point. There's no further deterioration. Yay!

The kitten we call Jane (Dar sings that to her every morning *g*) is much improved, too. We took off her final fentanyl patch this morning, and she is one happy kitty not to have her hind leg all bandaged up. Her tongue is mostly healed and her jaw is coming along well, too. She's still not as bouncy as she used to be, but she's getting there. I took a deep breath later this afternoon and let her go outside with Chloe and Mao. She was thrilled, and she and Chloe romped around for a while. The new rule is that the cats can outside from mid-morning until late afternoon. I don't know that they necessarily grasp the time difference, but it makes their humans feel a little better.

And that's about it. We're hoping to have a quiet day tomorrow for a change. No running around, no doctors appointments. I think the weather is going to co-operate, too. I hope Dar is feeling a bit better by then, because that would be the icing on the cake.
maystone: (Ewwww by alfiri)
I have to do another 24-hour urine collection. It would probably be for the best if I try to put a positive spin on this because I'm thinking that I'm going to be doing this on a regular basis. (Really - just give me a catheter. I can deal with a catheter, honest.) As Q says, I could become an expert at it. Now where would I put that on my resume, exactly? Heh.

What this really means is that I heard from the nephrologist, Dr. Vitou. In the mail this afternoon was a request for more blood work and the verdammte urine collection, along with a lengthy health questionnaire. This is actually pretty clever of her, because it's what she would ask for on a first appointment with her anyway. Now she can get my blood work, compare it to the past blood work, and make a determination from there. I'm glad that she's on the case, even if it is from a distance.
maystone: (I hate my life by _omnivore_)
I've been waiting to post until I had something definitive from my rheumatologist, but that doesn't look to be happening this week after all, so this is just an update. It's a long one, so I'll cut tag it. BTW, the icon for this isn't meant to be taken literally; I just don't have anything else that screams major *head desk* :)
It's a movie of the week. Or maybe an ep from Arrested Development. )

August 2015

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