maystone: (WTF by bubbletheory)
[personal profile] maystone
Saw doctor. Resident first, then he dragged in doctor toward the end. I am still a freak. Capitol F. Still falling in way weird ways, but now I've added peripheral neuropathies in bizarre ways. Nothing is semetric. One sensation will be felt on my right hand but not my left. The opposite in my feet. I totally fail the pancake-pitty-pat test with my left hand, but my right is OK. My right foot has less sensation than my right; my left shin is numb but my right is OK. They have no idea what's going on.

I have to go back tomorrow to bring them the MRIs that I cluelessly left behind today. Make that deliberately. No one asked me to bring them, so I didn't. I should have. I don't make good decisions anymore, frequently. Including my favorite so far: place hot cut of fresh brewed tea on table new garbage can. Pour a teaspoon of honey for the tea. Then open up the garbage pin and proceed to pour it in their instead. Fortunately I caught myself quickly on that one :) Tea need honey, honey. Garbage no need honey, honey.

He'll look at the MRIs and determine whether I need a new set. I think he's going to say yes, since even Rheumy Pope (I should start buying up domain names for all my faux bands) could see that the cerebellum slides were just OK. BTW, i've petitioned Pope to become the Rheumatologist in charge of my case. I have no idea if she will or if she'll even remember me. I should have started with "Hi, I'm the Harvard MTS who raises alpacas with her partner. Wanna play with my Lupus?"

Dr. Hill - another resident this morning - also knew nothing from alpacas. But while TY! was excited!, Hill seemed more perplexed. "Huh. But . . why would you raise them?" I bet he doesn't have a pet at home. Or every growing up. Still like him. He was flummoxed many times during his neuro exam of me because I have wacky responses to neural stimuli. His eyes just kept getting wider and wider; by the end of his exam he looked like one of those kitchy paint-on-velvet works with the little kids with the saucers eyes. Heh.

I had more blood work taken. This was 10 vials worth, but the big news is that he tested for a new anti-body. And it is the anti-treponemal antibody, and it's a highly specific test (meaning no false positives) for syphilis. Wheee! He's double-checking my lupus dx through a back door, becuase neural syphilis has lots of wonky neural symptoms as do I. Lots of Lupus patients have false-positive syphilis tests on record, because the antibodies for the two diseases that they constantly butt in on the testing of the other.

Tomorrow I drop a little pathet not off to Dr. Pope, the rheumy I saw in London on Monday, wherein I beg her to take me on as a patient. dar said keep it short and sweet, so I hope that she even remembers how I am.

Got lost in freakin' London trying to leave. And it took two hours to get there to begin thin. This is a much crapper commute than to the other London hospital I went to on Monday. So i should try to get some sleep.
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August 2015

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